Keep up the great work everyone. We're slowly but surely getting somewhere. :)
Friday, March 14, 2008
In the News
Eric Chen appeared in an article about autism on Sunday Times on the 8th of Feb 2008. He has kindly sent me a scan of this article. Please click on the picture to view the full article.
Keep up the great work everyone. We're slowly but surely getting somewhere. :)
Keep up the great work everyone. We're slowly but surely getting somewhere. :)
Wednesday, March 12, 2008
Update
We have established contact with ARC and they are keen to work with us on the Autism Awareness Project. However there will be several amendments to our original proposal.
Firstly, we will not be conducting talks in schools with autism support. This is because ARC is in the midst of planning strategies to give talks with their own people, so it is not necessary for us to do double the work.
The most viable option for us now is the music festival with local musicians who can come forth and speak up for the cause. We will also have some speakers and we will give out information as well.
Also April 2 is World Autism Day. While it is too late for us to do anything this year, we can look forward to plans for next year.
Proposal is shaping up, with everyone chipping in different portions. I am excited. :) Please email your parts, people! Thank you.
The Next Step will be interesting. We'll have to obtain funding!
Firstly, we will not be conducting talks in schools with autism support. This is because ARC is in the midst of planning strategies to give talks with their own people, so it is not necessary for us to do double the work.
The most viable option for us now is the music festival with local musicians who can come forth and speak up for the cause. We will also have some speakers and we will give out information as well.
Also April 2 is World Autism Day. While it is too late for us to do anything this year, we can look forward to plans for next year.
Proposal is shaping up, with everyone chipping in different portions. I am excited. :) Please email your parts, people! Thank you.
The Next Step will be interesting. We'll have to obtain funding!
Wednesday, January 16, 2008
3rd Meeting - Minutes
Meeting was attended by Eric Chen, Kevin Lee, Cheryl Ye, Lynne & Tian
Agenda
To discuss campaign direction
- youths/students: school talks, music event?, viral marketing
- all other ages: media, pamphlets/info brochures at strategic locations, modular booths?
- talk/forum/conference/seminar/workshop on autism?
- "autistic-friendly" family day?
- possible tie ups: Denise Phua, NIE, MOE, an autism organization with IPC status
Eric's Experiences
Eric is articulate and shared his experiences with us. However he did not go through any therapy or special education and has little to say about early intervention. He has written 2 books on autism with his own theories. He is effectively bilingual and can give talks in both English and Mandarin. He has had virtually no support from any organizations or his connections when he tried to launch the "zong" campaign to raise awareness about autism. He then went on to give talks in HK and China but things fell through with his sponsor.
Survey Update
We've has 116 people who have helped with the survey. I think we need more people to participate. Please continue to forward the survey link to friends. http://www.esurveyspro.com/Survey.aspx?id=9b547283-0c6b-47c8-8867-12a29d84cb24
New Contacts
I have done some research of my own and come across a lot of interesting material that I will share with the rest of you during the next meeting. Firstly, I've had a meeting with Bernise Ang from SYINC. She has given a lot of ideas and suggestions. She has also put me in touch with Daniel from AAS and Kala, who runs Barista Express, a social enterprise cafe for the occupational and wellness support for persons with Psychiatric Disablities.
Kala has been working with people with autism for over 7 years. She helps to run the SAI-i Autism Centre which is part of the Sunlove Abode for Psychtric Illness. Email correspondence has commenced.
I have also made contact with George and Varian from Space To Party who are developing a pool of young people who are more passionate about arts, music & society. They had a music event where artists spoke up for a cause quite recently. They are keen to work out something with us.
I also found AACI, a group that claims to be able to provide resources and help no matter where you are. I will email them to find out more.
Conclusion/Reflection
We need to get a formal proposal done to approach the organizations for a partnership, and also to ask for funding later on.
Agenda
To discuss campaign direction
- youths/students: school talks, music event?, viral marketing
- all other ages: media, pamphlets/info brochures at strategic locations, modular booths?
- talk/forum/conference/seminar/workshop on autism?
- "autistic-friendly" family day?
- possible tie ups: Denise Phua, NIE, MOE, an autism organization with IPC status
Eric's Experiences
Eric is articulate and shared his experiences with us. However he did not go through any therapy or special education and has little to say about early intervention. He has written 2 books on autism with his own theories. He is effectively bilingual and can give talks in both English and Mandarin. He has had virtually no support from any organizations or his connections when he tried to launch the "zong" campaign to raise awareness about autism. He then went on to give talks in HK and China but things fell through with his sponsor.
Survey Update
We've has 116 people who have helped with the survey. I think we need more people to participate. Please continue to forward the survey link to friends. http://www.esurveyspro.com/Survey.aspx?id=9b547283-0c6b-47c8-8867-12a29d84cb24
New Contacts
I have done some research of my own and come across a lot of interesting material that I will share with the rest of you during the next meeting. Firstly, I've had a meeting with Bernise Ang from SYINC. She has given a lot of ideas and suggestions. She has also put me in touch with Daniel from AAS and Kala, who runs Barista Express, a social enterprise cafe for the occupational and wellness support for persons with Psychiatric Disablities.
Kala has been working with people with autism for over 7 years. She helps to run the SAI-i Autism Centre which is part of the Sunlove Abode for Psychtric Illness. Email correspondence has commenced.
I have also made contact with George and Varian from Space To Party who are developing a pool of young people who are more passionate about arts, music & society. They had a music event where artists spoke up for a cause quite recently. They are keen to work out something with us.
I also found AACI, a group that claims to be able to provide resources and help no matter where you are. I will email them to find out more.
Conclusion/Reflection
We need to get a formal proposal done to approach the organizations for a partnership, and also to ask for funding later on.
Monday, December 24, 2007
Merry Christmas!
Hey everyone, I just wanted to put up a quick update.
All of us have been very busy recently, but our meetings will continue early January with more people! It's very encouraging that there are so many people who care and want to contribute in their own ways.
We've had 80 over people helping us out with our SURVEY, so thank you! If you haven't done so, it's still not too late to contribute.
That's it for now, have a Merry Christmas and a great New Year ahead!
All of us have been very busy recently, but our meetings will continue early January with more people! It's very encouraging that there are so many people who care and want to contribute in their own ways.
We've had 80 over people helping us out with our SURVEY, so thank you! If you haven't done so, it's still not too late to contribute.
That's it for now, have a Merry Christmas and a great New Year ahead!
Wednesday, November 28, 2007
Ignorance
Autism isn't contagious. Ignorance is.
Firstly, I would like to bring to attention certain comments left behind on my personal blog when I appealed to friends to do the survey.
26 Nov 2007 02:46:17 am IP: 165.21.155.
serene: u r fighting a losing battle..what do u expect to come of this? autistic people cant get decent jobs because of their disability.
27 Nov 07 01:39:11 am IP: 165.21.154
serene: my definition of 'decent job' is one with disposable income. just give me ONE example that an autistic person can do that earns 1800+ ?u cant
27 Nov 07 01:40:07 am IP: 165.21.154
serene: stop wasting ur friends' time by telling them to do useless surveys.
And here is Jermaine's reply.
jerms: My cousin was diagnosed with ASD and ADHD and he's now an accountant at PWC. Thanks. If you really want another example, haven't you heard of Dr Temple Grandin, shes an author that we studied in Uni, she was diagnosed with ASD but now is so successful
jerms: Of course he underwent intensive therapy when younger. Haha, this is getting all so funny. Serene, you make me laugh at how the word ignorance really stands out so boldly
It's because of people like serene who motivates us to put in this kind of effort in educating the public. This will always serve as a reminder, not just regarding Autism, but with every other type of discrimination. Ignorance and silence does much harm, so it's time to speak up. The lack of acceptance is due to a lack of understanding.
Now for other updates
Mr Brown
Elsie brought to attention some articles written by Mr Brown, and I found some links and other relevant information.
A Mom's Anguish
Little Miracles
With a bit of faith, tears and Robogirl
Other Singaporeans Speak Up
No need to be upset with Mr Brown
Let Mr Brown Speak
Dr Noel Chia
Mr Brown Revisited
Other info
-I also found a TIME magazine article, a book by a local autistic author and info regarding the different learning styles of people.
Inside the Autistic Mind (TIME)
Local autistic Author
Signed Speech
Learning Styles
-Autism Awareness Month in US is APril
-Autism Awareness Week in UK is 1 to 7 Oct.
Here are some articles regarding the current hoohah in UK about a Mr Brown (not the same blogger Mr Brown)
PR-USA.net
Invest in Children with Autism
The Mirror
Youtube Videos
Maybe these videos can help people understand autism better. I found some quite moving.
The Face Of Autism
A video on Quinn, an autistic boy put together by his mother. It details how they found out he had autism and puts in some other facts that can help people understand autism better.
Autism Enlightened
Documentary on autism
Autism Employment Story
A success story of an autistic person being emplyed.
Nathan's Story
This video shows how therapy and his loving parents helped Nathan, shot over a few years. You see a marked improvement in his behaviour.
Teddy
11 yr old autistic boy speaks up to help his schoolmates understand autism better. I think we need to encourage young people to step up and talk about their experience.
Missing Pieces
A music video on a song about autism with the singer talking about autism at the beginning of the clip.
Autism on Dateline Part 1, Part 2
Some tv programme talking about mercury in vaccines. They suspect this causes autism. This is just some extra information that is not that relevant to our cause.
Books ft. Autism
The Out of Sync Child by Carol Stock Kranowitz
The Curious Incident of the Dog in the Night Time by Mark Haddon
Nobody Nowhere and Somebody Somewhere by Donna Williams
Thinking In Pictures: and Other Reports from My Life with Autism by Temple Grandin
Little Ones Have Big Dreams Too: A Guide For Facilitators by Ann Donoghue Dillon
This last book features a different approach to therapy called Person-Centered Planning, encouraging people o focus on the child's needs and level.
And to all the serene's out there: I may not be a mother of an autistic child, or of a child for that matter, nor do I have any autistic relatives. But at least I do not presume to know everything there is to know about people. So I try to better understand by finding out more.
Everyone deserves a fair chance. If you put others down without even having the slightest idea about their condition, you ought to be ashamed of yourself. You have no idea how they feel, and what they're families are put through.
It doesn't cost anything to be nice. But snap judgements based on inaccurate stereotypes and ignorance does more harm than you can comprehend. And besides, when you say things that blatantly show your ignorance, you just look really stupid. Just thought I'd let you know.
Thassit from me for now. But I think we might have to revamp this site soon and organize it better.
Firstly, I would like to bring to attention certain comments left behind on my personal blog when I appealed to friends to do the survey.
26 Nov 2007 02:46:17 am IP: 165.21.155.
serene: u r fighting a losing battle..what do u expect to come of this? autistic people cant get decent jobs because of their disability.
27 Nov 07 01:39:11 am IP: 165.21.154
serene: my definition of 'decent job' is one with disposable income. just give me ONE example that an autistic person can do that earns 1800+ ?u cant
27 Nov 07 01:40:07 am IP: 165.21.154
serene: stop wasting ur friends' time by telling them to do useless surveys.
And here is Jermaine's reply.
jerms: My cousin was diagnosed with ASD and ADHD and he's now an accountant at PWC. Thanks. If you really want another example, haven't you heard of Dr Temple Grandin, shes an author that we studied in Uni, she was diagnosed with ASD but now is so successful
jerms: Of course he underwent intensive therapy when younger. Haha, this is getting all so funny. Serene, you make me laugh at how the word ignorance really stands out so boldly
It's because of people like serene who motivates us to put in this kind of effort in educating the public. This will always serve as a reminder, not just regarding Autism, but with every other type of discrimination. Ignorance and silence does much harm, so it's time to speak up. The lack of acceptance is due to a lack of understanding.
Now for other updates
Mr Brown
Elsie brought to attention some articles written by Mr Brown, and I found some links and other relevant information.
A Mom's Anguish
Little Miracles
With a bit of faith, tears and Robogirl
Other Singaporeans Speak Up
No need to be upset with Mr Brown
Let Mr Brown Speak
Dr Noel Chia
Mr Brown Revisited
Other info
-I also found a TIME magazine article, a book by a local autistic author and info regarding the different learning styles of people.
Inside the Autistic Mind (TIME)
Local autistic Author
Signed Speech
Learning Styles
-Autism Awareness Month in US is APril
-Autism Awareness Week in UK is 1 to 7 Oct.
Here are some articles regarding the current hoohah in UK about a Mr Brown (not the same blogger Mr Brown)
PR-USA.net
Invest in Children with Autism
The Mirror
Youtube Videos
Maybe these videos can help people understand autism better. I found some quite moving.
The Face Of Autism
A video on Quinn, an autistic boy put together by his mother. It details how they found out he had autism and puts in some other facts that can help people understand autism better.
Autism Enlightened
Documentary on autism
Autism Employment Story
A success story of an autistic person being emplyed.
Nathan's Story
This video shows how therapy and his loving parents helped Nathan, shot over a few years. You see a marked improvement in his behaviour.
Teddy
11 yr old autistic boy speaks up to help his schoolmates understand autism better. I think we need to encourage young people to step up and talk about their experience.
Missing Pieces
A music video on a song about autism with the singer talking about autism at the beginning of the clip.
Autism on Dateline Part 1, Part 2
Some tv programme talking about mercury in vaccines. They suspect this causes autism. This is just some extra information that is not that relevant to our cause.
Books ft. Autism
The Out of Sync Child by Carol Stock Kranowitz
The Curious Incident of the Dog in the Night Time by Mark Haddon
Nobody Nowhere and Somebody Somewhere by Donna Williams
Thinking In Pictures: and Other Reports from My Life with Autism by Temple Grandin
Little Ones Have Big Dreams Too: A Guide For Facilitators by Ann Donoghue Dillon
This last book features a different approach to therapy called Person-Centered Planning, encouraging people o focus on the child's needs and level.
And to all the serene's out there: I may not be a mother of an autistic child, or of a child for that matter, nor do I have any autistic relatives. But at least I do not presume to know everything there is to know about people. So I try to better understand by finding out more.
Everyone deserves a fair chance. If you put others down without even having the slightest idea about their condition, you ought to be ashamed of yourself. You have no idea how they feel, and what they're families are put through.
It doesn't cost anything to be nice. But snap judgements based on inaccurate stereotypes and ignorance does more harm than you can comprehend. And besides, when you say things that blatantly show your ignorance, you just look really stupid. Just thought I'd let you know.
Thassit from me for now. But I think we might have to revamp this site soon and organize it better.
Friday, November 23, 2007
Second Meeting - Minutes
Firstly, let's welcome aboard out our additional contributors, Kevin Lee & Stephen Lew. Thank you for your help. :)
Agenda
To establish a goal, refine survey questions to ascertain public perception
Goal
To successfully raise awareness by providing an accessible platform for the dissemination of comprehensible information by June 2008.
Survey
Please click here for the survey. If you received a soft copy of it, please send your response to 4autism@gmail.com
Info Update - Subsidies
Jermaine has provided an article on ABA therapy, please refer to emails. Lynne has also sent us information regarding Pathlight as follows:
Pathlight Background
- Autism-focused school that offers mainstream academic curriculum with life readiness skills
- Serves primarily children with autism and related disorders, who are cognitively able to access mainstream academics. Must be aged 6 to 16 years old.
- began operations in January 2004
- 41 to more than 240 students in 24 months.
School Fees/Subsidies
1)School fees are currently fixed at S$500 per month for Singapore citizens and Singapore Permanent Residents.
2) The fees are subject to revision depending on the financial requirements of operations.
3) Families with per capital monthly net household income of $700/- and below may apply for school fees subsidy.
Summary of Referral to Pathlight
1) Singapore citizens and PR are eligible, Foreigners – case by case basis subject to MOE’s approval, Immigration must issue Pass, no Singaporean disabled children on wait list, full fees (4x more), must contribute to Education fund, comprise max 10% of cohort
2) Diagnosis needed in the form of diagnostic or psychological report
3) Mild to moderate severity of autism
4) Non-verbal ability of IQ 70 and above. 70-79 may do a modified curriculum capped at 25% of school population.
5) independent in toileting and feeding
6) should not have major behavioural challenges which will disrupt a class of four.
KK Hospital rates as follows for Child Development Unit (applicable for any type of special needs testing, treatment, etc):
- Private (1st consultation) $129.90 for 60 min
- Private (repeat consultation) $86.60 for 30 min
= Subsidized rates: $30.00 & $20.00 respectively
Xray/specialized investigation
- Private: Itemized Charges
= Subsidized: $7.00 - $95.00 / session
Rehab Services
- Private: Itemized Charges
= Subsidized $11.00 - $65.00 / session
Day Surgery Bed Charges
- Private: $100
= Subsidized: $35
** Subsidised referral applies when a patient:
Is a Singaporean or Singapore PR and referred by a polyclinic or
Is referred by a restructured hospital where the patient is a subsidised patient or
Is discharged from inpatient B2 or C Ward Class
Presbytarian Community Services offers subsidies in centre-based financial assistance schemes for Integrated Childcare Programmes. Subsidized rates rane between $25 - $150/month.
Statistics
Other than this statement from Autism Resource Centre, no other specific figures could be determined. "In Singapore, it is difficult to provide a statistical figure on the actual number of persons affected by autism. Based on recent research, we expect a prevalence rate of 24,000 individuals with autism in our population of 4 million, of which 5,472 are children under the age of 19 years. We estimate that 216 new cases of children with autism are diagnosed annually."
Future
AUTISM RESOURCE CENTRE- planning to offer vocational training and job placement for those above 16years of age. - Part of their plan under Project Platinum (of which Pathlight School is a component) to develop an Employment Development and Enterprise Unit. - Delivery of this service would largely depend on availability of funding and support.
Find Out More
1) Means Testing. Many parents have signed a petition against it. Help is offered to families with extremely low income only. As it stands, people in middle-income families will not be receiving any subsidies from 2010 onwards as they phase in means testing. *refer to notes
2) Elsie has found that the blogger Mr. Brown has an autistic daughter. He has written several of his insights and thoughts on thewhat MOE is doing to help special needs children as well. *perhaps approach him to participate in our cause?
3) Survey demographics - representing the Singaporean population and other factors
Other Contacts
Tian - Suzanna:she will attend our meeting next week (not avail. weds)
- Linda/Chetan: director of Art Beat, art therapist for children (awaiting reply)
Work Delegation
Please refer to last week's list and check your emails now girls. First we need to send out the survey forms to everyone and anyone! Then we need to draw up the 2nd survey for autistic students in integrated programmes, and contact schools that have ASD support. Also, please send me the links and info you already have that I have not included in this post.
Conclusion/Reflection
It is evident that accurate, up-to-date statistics are not easily and readily available to the public, even for us. This is probably the case for families who want to know more about autism statistics too. When we are able to get more specific figures, it will help support our cause for spreading awareness. With autism, anyone can be affected, that is why everyone needs to be more aware.
Our survey to ascertain the public's perception and views regarding autism will also who us the next steps we have to take in terms of educating the public. It is a natural reaction to fear and/or shun what we do not understand. Education will help lessen fears and de-stigmatize autism. As a result, people will be less afraid to seek help.
The second survey for autistic students integrated into mainstream schools will determine whether such an environment is beneficial to them. There is no point in the government spending money on such integration schemes if the students are outcasted or bullied by their schoolmates. We need to ensure that the autistic children are ready for such an integration or it might prove to do more harm than good. At the same time, the other students need to be educated so as to bring about more understanding and acceptance for autism.
Agenda
To establish a goal, refine survey questions to ascertain public perception
Goal
To successfully raise awareness by providing an accessible platform for the dissemination of comprehensible information by June 2008.
Survey
Please click here for the survey. If you received a soft copy of it, please send your response to 4autism@gmail.com
Info Update - Subsidies
Jermaine has provided an article on ABA therapy, please refer to emails. Lynne has also sent us information regarding Pathlight as follows:
Pathlight Background
- Autism-focused school that offers mainstream academic curriculum with life readiness skills
- Serves primarily children with autism and related disorders, who are cognitively able to access mainstream academics. Must be aged 6 to 16 years old.
- began operations in January 2004
- 41 to more than 240 students in 24 months.
School Fees/Subsidies
1)School fees are currently fixed at S$500 per month for Singapore citizens and Singapore Permanent Residents.
2) The fees are subject to revision depending on the financial requirements of operations.
3) Families with per capital monthly net household income of $700/- and below may apply for school fees subsidy.
Summary of Referral to Pathlight
1) Singapore citizens and PR are eligible, Foreigners – case by case basis subject to MOE’s approval, Immigration must issue Pass, no Singaporean disabled children on wait list, full fees (4x more), must contribute to Education fund, comprise max 10% of cohort
2) Diagnosis needed in the form of diagnostic or psychological report
3) Mild to moderate severity of autism
4) Non-verbal ability of IQ 70 and above. 70-79 may do a modified curriculum capped at 25% of school population.
5) independent in toileting and feeding
6) should not have major behavioural challenges which will disrupt a class of four.
KK Hospital rates as follows for Child Development Unit (applicable for any type of special needs testing, treatment, etc):
- Private (1st consultation) $129.90 for 60 min
- Private (repeat consultation) $86.60 for 30 min
= Subsidized rates: $30.00 & $20.00 respectively
Xray/specialized investigation
- Private: Itemized Charges
= Subsidized: $7.00 - $95.00 / session
Rehab Services
- Private: Itemized Charges
= Subsidized $11.00 - $65.00 / session
Day Surgery Bed Charges
- Private: $100
= Subsidized: $35
** Subsidised referral applies when a patient:
Is a Singaporean or Singapore PR and referred by a polyclinic or
Is referred by a restructured hospital where the patient is a subsidised patient or
Is discharged from inpatient B2 or C Ward Class
Presbytarian Community Services offers subsidies in centre-based financial assistance schemes for Integrated Childcare Programmes. Subsidized rates rane between $25 - $150/month.
Statistics
Other than this statement from Autism Resource Centre, no other specific figures could be determined. "In Singapore, it is difficult to provide a statistical figure on the actual number of persons affected by autism. Based on recent research, we expect a prevalence rate of 24,000 individuals with autism in our population of 4 million, of which 5,472 are children under the age of 19 years. We estimate that 216 new cases of children with autism are diagnosed annually."
Future
AUTISM RESOURCE CENTRE- planning to offer vocational training and job placement for those above 16years of age. - Part of their plan under Project Platinum (of which Pathlight School is a component) to develop an Employment Development and Enterprise Unit. - Delivery of this service would largely depend on availability of funding and support.
Find Out More
1) Means Testing. Many parents have signed a petition against it. Help is offered to families with extremely low income only. As it stands, people in middle-income families will not be receiving any subsidies from 2010 onwards as they phase in means testing. *refer to notes
2) Elsie has found that the blogger Mr. Brown has an autistic daughter. He has written several of his insights and thoughts on thewhat MOE is doing to help special needs children as well. *perhaps approach him to participate in our cause?
3) Survey demographics - representing the Singaporean population and other factors
Other Contacts
Tian - Suzanna:she will attend our meeting next week (not avail. weds)
- Linda/Chetan: director of Art Beat, art therapist for children (awaiting reply)
Work Delegation
Please refer to last week's list and check your emails now girls. First we need to send out the survey forms to everyone and anyone! Then we need to draw up the 2nd survey for autistic students in integrated programmes, and contact schools that have ASD support. Also, please send me the links and info you already have that I have not included in this post.
Conclusion/Reflection
It is evident that accurate, up-to-date statistics are not easily and readily available to the public, even for us. This is probably the case for families who want to know more about autism statistics too. When we are able to get more specific figures, it will help support our cause for spreading awareness. With autism, anyone can be affected, that is why everyone needs to be more aware.
Our survey to ascertain the public's perception and views regarding autism will also who us the next steps we have to take in terms of educating the public. It is a natural reaction to fear and/or shun what we do not understand. Education will help lessen fears and de-stigmatize autism. As a result, people will be less afraid to seek help.
The second survey for autistic students integrated into mainstream schools will determine whether such an environment is beneficial to them. There is no point in the government spending money on such integration schemes if the students are outcasted or bullied by their schoolmates. We need to ensure that the autistic children are ready for such an integration or it might prove to do more harm than good. At the same time, the other students need to be educated so as to bring about more understanding and acceptance for autism.
Wednesday, November 14, 2007
First Meeting - Minutes
Agenda
To pool resources and information from all 4 of us, and establish a rough timeline to get things done.
Basic Information (Wikipedia)
Autism is a brain development disorder that follows a steady course wihtout remission or relapse. The number of people known to have autism has increased dramatically since the 1980s, at least partly due to changes in diagnostic practice; the question of whether prevalence has increased is unresolved.
Autism MAY co-occur with learning disorders (dyslexia, dysgraphia etc) OR may not be accompanied BY (instead of with) any of these at all. It is a very complex disorder and the needs of these individuals vary greatly. There is no cure.
Autism is defined in the DSM-IV-TR as exhibiting at least six symptoms total, including at least two symptoms of qualitative impairment in social interaction, at least one symptom of qualitative impairment in communication, and at least one symptom of restricted and repetitive behavior. Sample symptoms include lack of social or emotional reciprocity, stereotyped and repetitive use of language or idiosyncratic language, and persistent preoccupation with parts of objects. Onset must be prior to age three years, with delays or abnormal functioning in either social interaction, language as used in social communication, or symbolic or imaginative play.
Common Myths & Misconceptions
X Autism is a disease
X Autism is caused by bad parenting
X An autistic child is a genius
X Autism can be outgrown
X All autistics are the same
X Autistics have limited potentials
X Autism is an emotional disability
X Autistic children like to be alone
Statistics (to be updated)
Some 24,000 out of 4 millions are affected (Source: Autism Resource Centre)
5,472 under the age of 9.
2,500 with mild abilities in mainstream schools (Reseach Centre, 2005)
Screening
Parents should look out for signs of unusual behaviors in their child. Signs exhibit themselves before the age of three. As postponing treatment may affect long-term outcome, any of the following signs is reason to have a child evaluated by a specialist without delay:
- No babbling by 12 months.
- No gesturing (pointing, waving goodbye, etc.) by 12 months.
- No single words by 16 months.
- No two-word spontaneous phrases (not including echolalia) by 24 months.
- Any loss of any language or social skills, at any age.
Costs approx $550 - $680 per assessment. We found that KK hospital provides subsidised screenings, but we have yet to find out how much and if there is a waiting list.
Individual Educational Plan
- ABA Therapy (Applied Behavioural Analysis)
The ideal scenario involves an autistic child attending classes everyday for 8 hours/day. It costs $50 to $85/hr. Most families can only afford to send their child in 3 days a week as it is very costly. Parents have the option to obtain a certificate that in ABA therapy, but they can also do training for their children at home with training and professional guidance. (Cost unknown atm)
Contacts to follow up on
Child Psychologists - Jermaine/Lynne
Chetan Rupa - Daphne
Drummer - Elsie
Sponsors/Fund contributors - all
To Do List
1. Tie up with existing organizations
2. MOE
3. Government clearance
4. Campaign direction
a. videos - existing docos for schs
b. free talks
c. media coverage
d. advertising - sponsors, funding, ads
e. info @ CCs, schools, HDBs
5. Location - to be confirmed
a. rental
b. tentage/power etc
c. info dissemination (printing?)
d. manpower - volunteers
Work Delegation
Currently, we need to do the following:
1. informal survey about public perception of autism
2. Hit the library for old articles on microfilm
3. Check papers/mags for current articles
4. research on existing orgs - formulate email templates only
ELSIE: Autism Association / Singapore Autistic Schools
JERMS: your school and others not on our list
LYNNE: Pathlight / Autism Resource Centre (stats)
TIAN: St Andrew's Autism Centre
5. Other additional research
ELSIE: mags, associations
JERMS: Schools (cost, subsidiaries/help), therapy
LYNNE: Govt help (MOE), screening subsidies
TIAN: Info compilation, support groups, website
Conclusion
A lot more research needs to be done before we can form any concrete plans. We must be focused and organized so as to be taken seriously. Next meeting is set for 21 NOV 07, WED to review our timeline, additional information and resources, and to update known statistics.
PS: Girls, I will email you Lynne's research materials individually.
To pool resources and information from all 4 of us, and establish a rough timeline to get things done.
Basic Information (Wikipedia)
Autism is a brain development disorder that follows a steady course wihtout remission or relapse. The number of people known to have autism has increased dramatically since the 1980s, at least partly due to changes in diagnostic practice; the question of whether prevalence has increased is unresolved.
Autism MAY co-occur with learning disorders (dyslexia, dysgraphia etc) OR may not be accompanied BY (instead of with) any of these at all. It is a very complex disorder and the needs of these individuals vary greatly. There is no cure.
Autism is defined in the DSM-IV-TR as exhibiting at least six symptoms total, including at least two symptoms of qualitative impairment in social interaction, at least one symptom of qualitative impairment in communication, and at least one symptom of restricted and repetitive behavior. Sample symptoms include lack of social or emotional reciprocity, stereotyped and repetitive use of language or idiosyncratic language, and persistent preoccupation with parts of objects. Onset must be prior to age three years, with delays or abnormal functioning in either social interaction, language as used in social communication, or symbolic or imaginative play.
Common Myths & Misconceptions
X Autism is a disease
X Autism is caused by bad parenting
X An autistic child is a genius
X Autism can be outgrown
X All autistics are the same
X Autistics have limited potentials
X Autism is an emotional disability
X Autistic children like to be alone
Statistics (to be updated)
Some 24,000 out of 4 millions are affected (Source: Autism Resource Centre)
5,472 under the age of 9.
2,500 with mild abilities in mainstream schools (Reseach Centre, 2005)
Screening
Parents should look out for signs of unusual behaviors in their child. Signs exhibit themselves before the age of three. As postponing treatment may affect long-term outcome, any of the following signs is reason to have a child evaluated by a specialist without delay:
- No babbling by 12 months.
- No gesturing (pointing, waving goodbye, etc.) by 12 months.
- No single words by 16 months.
- No two-word spontaneous phrases (not including echolalia) by 24 months.
- Any loss of any language or social skills, at any age.
Costs approx $550 - $680 per assessment. We found that KK hospital provides subsidised screenings, but we have yet to find out how much and if there is a waiting list.
Individual Educational Plan
- ABA Therapy (Applied Behavioural Analysis)
The ideal scenario involves an autistic child attending classes everyday for 8 hours/day. It costs $50 to $85/hr. Most families can only afford to send their child in 3 days a week as it is very costly. Parents have the option to obtain a certificate that in ABA therapy, but they can also do training for their children at home with training and professional guidance. (Cost unknown atm)
Contacts to follow up on
Child Psychologists - Jermaine/Lynne
Chetan Rupa - Daphne
Drummer - Elsie
Sponsors/Fund contributors - all
To Do List
1. Tie up with existing organizations
2. MOE
3. Government clearance
4. Campaign direction
a. videos - existing docos for schs
b. free talks
c. media coverage
d. advertising - sponsors, funding, ads
e. info @ CCs, schools, HDBs
5. Location - to be confirmed
a. rental
b. tentage/power etc
c. info dissemination (printing?)
d. manpower - volunteers
Work Delegation
Currently, we need to do the following:
1. informal survey about public perception of autism
2. Hit the library for old articles on microfilm
3. Check papers/mags for current articles
4. research on existing orgs - formulate email templates only
ELSIE: Autism Association / Singapore Autistic Schools
JERMS: your school and others not on our list
LYNNE: Pathlight / Autism Resource Centre (stats)
TIAN: St Andrew's Autism Centre
5. Other additional research
ELSIE: mags, associations
JERMS: Schools (cost, subsidiaries/help), therapy
LYNNE: Govt help (MOE), screening subsidies
TIAN: Info compilation, support groups, website
Conclusion
A lot more research needs to be done before we can form any concrete plans. We must be focused and organized so as to be taken seriously. Next meeting is set for 21 NOV 07, WED to review our timeline, additional information and resources, and to update known statistics.
PS: Girls, I will email you Lynne's research materials individually.
Initiation
Welcome to Autism Awareness. This blog is meant to chart our progress and record all the information we have gathered. It will also serve as a learning journal as we get things done and tackle unfamiliar obstacles. Here's just a brief introduction to everything.
The WHAT
Our Mission
To provide an accessible platform that promotes public awareness about autism in order to de-stigmatise it, so that Singaporeans may receive the necessary education and information, and affected families are familiarized with the available assistance and subsidies for the betterment of their childrens' lives.
Our Vision
"Hope and help for all."
We hope that with this campaign, Singaporeans are better informed about this developmental disorder and have no fear of it. Only when de-stigmatised, can people truly reach out for help without being scorned or ridiculed.
Also, with the governments current attempts to integrate mildly autistic children into public schools, we hope that families can educate their children to understand and accept the autistics' behaviours and inclinations.
The WHY
Why are we doing this? Because we care, and we know the importance of education and early detection. If detected early, therapy and individually tailored education plans can help autistic children lead more normal lives in future. Many cases go undetected because the public is not aware of the symptoms of autism. Many children exhibit classic signs that are often misinterpreted as rebellion or naughtiness.
The WHO
The four of us who got together all have full-time jobs and are doing this out of passion.
Elsie Yeo
Elsie first came in contact with autistic children when a friend roped her in as a volunteer. She had known nothing about autism until then and was greatly affected by her experience, which has led to the birth of this awareness campaign. She is a full-time marketing manager.
Jermaine Quek
Jermaine is a psychology graduate from Deakin University (Aus). She worked with autistic children in a private centre during her school holidays back in Singapore. She has the most experience and information regarding the learning disorder and the inner workings of a private centre/school. She is currently working as a program coordinator.
Lynne Huang
Lynne is a teacher under the MEP programme. She recently did research on autism for a project and decided to join us in spreading awareness for autism after realizing the importance of education. She is well informed of the current government plans to help autistic children in Singapore and is currently training in NIE.
Daphne Li
Daphne has done some volunteer work and is keen to help in spreading awareness about autism in Singapore. She will be coordinating and recording the group's progression with this awareness campaign, which can serve as a valuable learning experience for anyone who is interested. She is currently working at a positive psychology center.
The HOW
How we're going to do this may change along the way as there is a lot that we still don't know. We are learning as we go along, so any kind of help is greatly appreciated. We hope to have an awareness campaign that can disseminate information about autism and the existing groups and organizations.
We will approach existing groups and organizations, support groups, as well as the government, hospitals and schools for an updated and comprehensive list of resources available for affected families.
The WHEN
Targeted date: June 2008
The WHERE
To be confirmed at a later date.
Do contact us if you wish to contribute suggestions, information or help at 4autism@gmail.com or help by forwarding this blog address to interested parties. Thank you!
The WHAT
Our Mission
To provide an accessible platform that promotes public awareness about autism in order to de-stigmatise it, so that Singaporeans may receive the necessary education and information, and affected families are familiarized with the available assistance and subsidies for the betterment of their childrens' lives.
Our Vision
"Hope and help for all."
We hope that with this campaign, Singaporeans are better informed about this developmental disorder and have no fear of it. Only when de-stigmatised, can people truly reach out for help without being scorned or ridiculed.
Also, with the governments current attempts to integrate mildly autistic children into public schools, we hope that families can educate their children to understand and accept the autistics' behaviours and inclinations.
The WHY
Why are we doing this? Because we care, and we know the importance of education and early detection. If detected early, therapy and individually tailored education plans can help autistic children lead more normal lives in future. Many cases go undetected because the public is not aware of the symptoms of autism. Many children exhibit classic signs that are often misinterpreted as rebellion or naughtiness.
The WHO
The four of us who got together all have full-time jobs and are doing this out of passion.
Elsie Yeo
Elsie first came in contact with autistic children when a friend roped her in as a volunteer. She had known nothing about autism until then and was greatly affected by her experience, which has led to the birth of this awareness campaign. She is a full-time marketing manager.
Jermaine Quek
Jermaine is a psychology graduate from Deakin University (Aus). She worked with autistic children in a private centre during her school holidays back in Singapore. She has the most experience and information regarding the learning disorder and the inner workings of a private centre/school. She is currently working as a program coordinator.
Lynne Huang
Lynne is a teacher under the MEP programme. She recently did research on autism for a project and decided to join us in spreading awareness for autism after realizing the importance of education. She is well informed of the current government plans to help autistic children in Singapore and is currently training in NIE.
Daphne Li
Daphne has done some volunteer work and is keen to help in spreading awareness about autism in Singapore. She will be coordinating and recording the group's progression with this awareness campaign, which can serve as a valuable learning experience for anyone who is interested. She is currently working at a positive psychology center.
The HOW
How we're going to do this may change along the way as there is a lot that we still don't know. We are learning as we go along, so any kind of help is greatly appreciated. We hope to have an awareness campaign that can disseminate information about autism and the existing groups and organizations.
We will approach existing groups and organizations, support groups, as well as the government, hospitals and schools for an updated and comprehensive list of resources available for affected families.
The WHEN
Targeted date: June 2008
The WHERE
To be confirmed at a later date.
Do contact us if you wish to contribute suggestions, information or help at 4autism@gmail.com or help by forwarding this blog address to interested parties. Thank you!
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